23 Ehlers Danlos Syndromes Life Hacks: The Ehlers Danlos Series

Although, being diagnosed with Ehlers Danlos Syndrome, has given me slightly more sanity. Living with this illness, like many … More

15 Things Medical Zebras have Learnt to Love about their Incurable Illness: The Ehlers Danlos Series

If you haven’t heard of Ehlers Danlos Syndrome – you are not alone. Ehlers Danlos Syndrome is a rare, incurable … More

Hey Guys, I was asked to be a contributor in an educational film to present to medical professionals by Troy … More

If I was diagnosed with Ehlers Danlos syndrome from birth, I may have never of learnt what to say to … More

Hi Guys, If you are just tuning in and missed my initial post or want to get involved in the … More

Hey Guys, As the sun is shining it is clear summer has started … but for those of you … More

Hi Guys, I have been undergoing lots at hospitals to do with Gastroenterology to update you on.I promise will be … More

Hi Guys, I was contacted by Victoria at Burning Nights, who has produced a valuable infographic about the Spoon theory. … More